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What Patients Don't Say and Physicians Don't Ask: A Needs Assessment in Myasthenia Gravis Integrating Patient and Healthcare Professional Perspectives.

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第一作者： Cornelia,Reyes Acosta

第一单位： LLH Concepts GbR, Eggentalerstrasse 5, 85778, Haimhausen, Germany. reyes.cornelia@gmail.com.

作者： Cornelia,Reyes Acosta ^[1] ; Ivo,Vlaev ^[2] ; Alexis,Rodriguez ^[3] ; Allison,Foss ^[4] ; Ashwin,Pinto ^[5] ; Channa,Hewamadduma ^[6] ; John,Vissing ^[7] ; Nicholas J,Silvestri ^[8] ; Sophie,Lehnerer ^[9] ; Marc,De Backer ^[10] ; Natasha,Monin ^[11] ; Sophie,Barry ^[12] ; Ina,Weisshardt ^[13]

作者单位： LLH Concepts GbR, Eggentalerstrasse 5, 85778, Haimhausen, Germany. reyes.cornelia@gmail.com. ^[1] Warwick Business School, University of Warwick, Coventry, UK. ^[2] MG Georgia, Atlanta, GA, USA. ^[3] Myasthenia Gravis Association (MGA), Kansas City, MO, USA. ^[4] Division of Clinical Neuroscience, University of Southampton, Southampton, UK. ^[5] Academic Neuromuscular Unit, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK.;Sheffield Institute for Translational Neurosciences (SITraN), University of Sheffield, Sheffield, UK. ^[6] Copenhagen Neuromuscular Center, Department of Neurology, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark. ^[7] Department of Neurology, Jacobs School of Medicine and Biomedical Sciences, University at Buffalo, Buffalo, NY, USA. ^[8] Department of Neurology with Experimental Neurology, Charité - Universitätsmedizin Berlin, Berlin, Germany. ^[9] UCB, Brussels, Belgium. ^[10] UCB, Malvern, Australia. ^[11] UCB, Dublin, Ireland. ^[12] LLH Concepts GbR, Eggentalerstrasse 5, 85778, Haimhausen, Germany. ^[13]

关键词 Behavioral analytics Collaborative research Immersive learning experience Myasthenia gravis (MG)Needs assessment Patient engagement Patient perspective Patient–physician communication Shared decision-making (SDM)

DOI 10.1007/s40120-025-00751-9

PMID 40372604

发布时间 2025-07-15

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Neurology and therapy

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