第一单位：
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Erasmus University Medical Centre Rotterdam, Rotterdam, The Netherlands.
作者：
Victor L,van Roey [1]
;
Saranda,Ombashi [1]
;
Irene M J,Mathijssen [1]
;
Åsa A,Munkhammar [2]
;
Pamela M,Åsten [3]
;
Anouar,Bouzariouh [1]
;
Charlotte,Célérier [4]
;
Caroline,Dana [4]
;
Marieke,van Dooren [1]
;
Mariët,Faasse [5]
;
Brigitte,Fauroux [4]
;
Peter,Frykholm [2]
;
Arnoud,Heinen [6]
;
Arja,Heliövaara [7]
;
Koen F M,Joosten [1]
;
Marizela,Kljajic [8]
;
Eva,Larsson [2]
;
Sjoukje,Loudon [1]
;
Ivana,Marinac [9]
;
Montserrat,Munill Ferrer [10]
;
Henriette,Poldermans [1]
;
Eva-Lena,Stattin [2]
;
Marloes,Streppel [1]
;
Malin,Svensson [2]
;
Briac,Thierry [4]
;
Stephen T H,Tjoa [1]
;
Alexandra,Topa [8]
;
Elin,Weissbach [1]
;
Eppo B,Wolvius [1]
;
Víctor,Zafra Vallejo [11]
;
Sarah L,Versnel [1]
作者单位：
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Erasmus University Medical Centre Rotterdam, Rotterdam, The Netherlands.
[1]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Uppsala University Hospital, Uppsala, Sweden.
[2]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Oslo University Hospital, Oslo, Norway.
[3]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Hôpital Necker - Enfants Malades, Assistance Publique - Hôpitaux de Paris, Paris, France.
[4]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Erasmus University Medical Centre Rotterdam, Rotterdam, The Netherlands.;Dutch Patient and Parent Society for Congenital Craniofacial Conditions (LAPOSA), The Netherlands.
[5]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Dutch Patient and Parent Society for Congenital Craniofacial Conditions (LAPOSA), The Netherlands.
[6]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Helsinki University Hospital, Helsinki, Finland.
[7]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Sahlgrenska University Hospital, Institute of Biomedicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
[8]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Rare Diseases Croatia, Croatia.
[9]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;Hospital Vall d'Hebron, Barcelona, Spain.
[10]
European Reference Network for Rare and/or Complex Craniofacial Anomalies and Ear, Nose, and Throat Disorders, Rotterdam, The Netherlands.;University Hospital 12 de Octubre, Madrid, Spain.
[11]
DOI
10.1097/SCS.0000000000011695
PMID
40694792
发布时间
2026-01-07
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