首页> International journal of population data science> Improving transparency in data access processes: Developing best practice standards and promoting system-wide change through a competitive funding call.

Improving transparency in data access processes: Developing best practice standards and promoting system-wide change through a competitive funding call.

导出 LinkOut

翻译打印收藏纠错

第一作者： Yemi,Macaulay

第一单位： Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW1 2BE.;Joint first authors.

作者： Yemi,Macaulay ^[1] ; Ester,Bellavia ^[1] ; Rachel,Brophy ^[2] ; Angela,Coulter ^[3] ; Ben,Glampson ^[4] ; Bethany,Gilbert ^[2] ; Alan,Holcroft ^[3] ; Erik,Mayer ^[4] ; Edel,McNamara ^[2] ; Katherine,O'Sullivan ^[5] ; Paola,Quattroni ^[2] ; David,Seymour ^[2] ; Yvonne,Silove ^[6] ; Doreen,Tembo ^[2] ; Andrew D,Morris ^[2] ; Cassie,Smith ^[2] ; Andy,Boyd ^[7]

作者单位： Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW1 2BE.;Joint first authors. ^[1] Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW1 2BE. ^[2] On behalf of the HDR UK Public Advisory Board. ^[3] Department of Surgery and Cancer, Imperial College London, W2 1NY, UK.;iCARE Secure Data Environment, Digital Collaboration Space, Imperial College Healthcare NHS Trust, St Mary's Hospital, 1a Sheldon Square, W2 6PY, UK. ^[4] Research & Innovation IT, University of Sheffield, Sheffield S10 2FN. ^[5] Healthcare Quality Improvement Partnership, London, EC1V 2NX. ^[6] Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW1 2BE.;UK Longitudinal Linkage Collaboration, University of Bristol, Canynge Hall, Clifton, Bristol, BS8 2PS. ^[7]

关键词 CARE FAIR Pan-UK data governance steering group UK health data research alliance alliance data access data safe haven [DSH]five safes patient and public involvement and engagement [PPIE]secure data environment [SDE]social licence transparency trusted research environment [TRE]

医学主题词人类(Humans);信息传播(Information Dissemination);信息获取(Access to Information)

DOI 10.23889/ijpds.v10i2.2949

PMID 41189999

发布时间 2025-11-07

翻译满意度评价：

准确一般字义偏差语意偏离译文作用小提交