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Management of Duchenne Muscular Dystrophy in Clinical Practice: A Survey-Based Study in Spain.

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第一作者： Carlos,Ortez

第一单位： Neuromuscular Unit, Department of Neurology, Hospital Sant Joan de Deu, Barcelona, Spain.

作者： Carlos,Ortez ^[1] ; María,Branas-Pampillón ^[2] ; Joaquín Alejandro,Fernandez ^[3] ; Elisa,Guillen ^[4] ; Ángeles,Terrancle ^[4] ; Jorge,Maurino ^[4] ; Marisol,Montolio ^[5] ; Ana,Camacho ^[6]

作者单位： Neuromuscular Unit, Department of Neurology, Hospital Sant Joan de Deu, Barcelona, Spain. ^[1] Medical Department, Roche Farma, Ribera del Loira 50, 28042, Madrid, Spain. maria.branas_pampillon@roche.com. ^[2] Pediatric Neurology Unit, Hospital Reina Sofia, Cordoba, Spain. ^[3] Medical Department, Roche Farma, Ribera del Loira 50, 28042, Madrid, Spain. ^[4] Duchenne Parent Project España, Madrid, Spain.;Faculty of Biology, Department of Cell Biology, Physiology and Immunology, University of Barcelona, Barcelona, Spain. ^[5] Pediatric Neurology Unit, Hospital Universitario, 12 de Octubre, Madrid, Spain. ^[6]

关键词 Corticosteroids Duchenne muscular dystrophy Early diagnosis Multidisciplinary care Pediatric neurology Quality of life

DOI 10.1007/s40120-026-00903-5

PMID 41748841

发布时间 2026-05-16

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