摘要目的 了解造血干细胞移植患者照顾者的照护体验和需求,为针对性干预提供依据.方法 采用质性研究中的现象学研究方法,对10名造血干细胞移植患者照顾者进行半结构式深度访谈后对资料进行归纳分析.结果 提炼出4个主题:照顾负担沉重、适应照顾者角色、专业支持的需求、人文关怀的需求.结论 医护人员应加强对造血干细胞移植患者照顾者的健康教育,提高他们的照顾能力及对自身的健康关注,缓解他们的心理压力,同时动员社会力量,减轻照顾负担.

abstractsObjective To investigate the experience and needs of caregivers of patients with hematopoietic stem cell transplantion (HSCT) , in order to provide the basis for targeted intervention. Methods Using qualitative phenomenological research methods, semi- structured interviews of 10 caregivers of HSCT patients were conducted, then the data were summarized and analyzed. Results Four themes were extracted: heavy caregiving burden, adaptation to the caregiving role, professional support needs, humanistic care needs. Conclusions The medical staff should strengthen the health education on HSCT caregivers to improve their ability and their own health concerns, alleviate their psychological pressure, and mobilize social forces to reduce the burden of care.