摘要目的 了解视网膜母细胞瘤患儿母亲的焦虑、疾病不确定感及心理需求情况,为临床护理实施提供参考,从而进行有针对性的护理干预.方法 30名视网膜母细胞患儿母亲为调查组,30名健康儿童母亲为对照组进行问卷调查.比较两组的焦虑情况及心理需求.结果 调查组的焦虑自评量表(SAS)得分(46.63±8.98)分,高于对照组(30.5±5.68)分,两组比较差异有统计学意义(t=8.316,P＜0.01).通过分析疾病不确定感的排序可以看出,视网膜母细胞瘤是否危及生命、患儿存活时间、疾病复发问题、保眼球问题及患儿病情处于何种阶段是困扰着母亲的突出问题.患儿疾病的情况、治疗的效果、手术后患儿生存、眼球摘除后是否还会转移、化疗的并发症及社会心理及经济支持为调查组母亲迫切需要了解的问题.结论 视网膜母细胞瘤患儿母亲的焦虑程度高于健康儿童母亲,针对视网膜母细胞瘤患儿母亲焦虑情况,分析疾病不确定感和心理需求可以帮助护士对视网膜母细胞瘤患儿母亲更好地进行健康教育以及心理护理,最大限度满足她们的心理需求,减轻她们的焦虑情况,从而使她们更好地配合护理人员对视网膜母细胞瘤患儿进行积极有效的治疗和护理.

abstractsObjective To explore anxiety condition,disease uncertainty and psychological requirement of retinoblastoma patients' mothers and provide references for clinical nursing.Methods Mothers of 30 healthy children were classified as observation group.30 mothers of children with retinoblastoma were classified investigation group.They were all detected by questionnaire survey.Results General condition between observation and investigation group had no significant difference ( P ＞ 0.05 ).SAS score of anxiety self-rated chart of investigation group was higher than control group [ (46.63 ± 8.98 ) vs (30.5 ± 5.68) ; t =8.316,P ＜0.01 ],which was also higher than domestic norm.Analyzing the disease uncertainty order,the severe question that puzzled parents were whether retinoblastoma can lead to death,survival time,recurrence,keeping from eyeball removal and stage of disease.The answers of questions that investigation group want to know were condition of disease,therapy result,survival after operation,metastasis of retinoblastoma,complications of chemotherapy and support of social psychology and economic.Conclusions Anxiety level of retinoblastoma children's mother was higher than healthy children' s mother.According to anxiety condition,disease uncertainty and psychological requirement of retinoblastoma children' s mother,nurses can help them release their anxiety and satisfy their psychological requirement so as to reach effective treatment.