摘要目的调查颅脑肿瘤患儿父母疾病不确定感及应对方式,探讨其相关性.方法采用问卷调查法,便利抽取2018年11月—2019年4月于北京天坛医院神外小儿病区就诊的208例颅脑肿瘤患儿的父亲或母亲进行调查.采用疾病不确定感问卷调查颅脑肿瘤疾病患儿父母的疾病不确定感,采用慢性疾病患儿父母应对方式量表调查颅脑肿瘤患儿父母的应对方式.结果颅脑肿瘤患儿父母疾病不确定感得分为(84.57±16.16)分,处于中等水平;应对方式得分为(3.71±0.45)分.患儿父母疾病不确定感水平与应对方式呈负相关(r=-0.289,P＜0.001).结论通过提高在疾病诊疗、预后、照顾等方面的信息支持,以及促进有效积极应对方式水平的形成,可降低颅脑肿瘤患儿父母的疾病不确定感水平.

abstractsObjective? To investigate the illness uncertainty and coping style among parents of brain tumor children and to explore the correlations between them. Methods? From November 2018 to April 2019, we selected 208 parents of brain tumor children in Children's Ward at Beijing Tiantan Hospital by convenience sampling with the method of survey by questionnaire. The Parents' Perception Uncertainty in Illness Scale (PPUS) and the Coping Health Inventory for Parents (CHIP) were used to investigate the illness uncertainty and coping style of parents of brain tumor children. Results? Among those parents of brain tumor children, the score of illness uncertainty was (84.57±16.16) in a middle level. The score of coping style was (3.71±0.45). The illness uncertainty of children's parents had a negative correlation with the coping style with a statistical difference (r=-0.289, P＜0.001). Conclusions? Increasing information support in diagnosis and treatment, prognosis and care of diseases,and promoting effective and positive coping style can decrease the illness uncertainty parents of brain tumor children.